Yesterday was a tough day in dealing with doctors. We lost all confidence in one doctor and another doctor turned us down to treat me for Lyme, and he was in the medical center.
On the outside I look fairly normal and some would debate that I am sick at all. What people don't understand that, amongst other things, it doesn't take much to exhaust me. For example, Sunday night I had the joy of watching my oldest participate in her first Bible Drill competition. She blew me away as she stood up there so confident and as she demonstrated more knowledge about the bible then I feel I have. If only I had known at her age what she knows now. I helped judge for her group and the older kids group. Nothing too demanding. I sat at a table and marked on a piece of paper when they make a mistake. But my adrenaline was pumping with nerves for Becka as she competed. When I left I was exhausted and had nothing left for when I got home. "Crashed" is what we call it in my house. Chris makes dinner and takes care of things as I become a lump of uselessness with a body begging to go to bed.
All the emotions involved in yesterday had the same effect. I took Becka to gymnastics and had Madilyn with me for the first time in several weeks (thanks to some sweet people) and I was already spent before I got there. Already very sensitive to sound and light, it was all I could do to sit there in the parent room without climbing the walls. We got home and I was useless, just waiting for bed time. When I get like that I can't do anything but just sit. No physical energy or mental energy left to do anything else. I can watch something or do something brainless like work on my farm on facebook, but thats about it.
Today I have no energy and the processes are extremely slow. I am thankful that not much is expected of me today because I just don't have it. However, we did get some information that gave us some direction on the doctor situation after being left with the feeling of no hope yesterday.
Chris was checking things out on line and found two possibilities. One is called the UT Physicians Clinic in downtown Houston. I don't know any more about it than that but he submitted our name and during lunch they called (yippee, someone finally called us back!). They told us to fax them all our tests and documentation and they might be able to get us in at the end of April...ugh!
The other is the Houston support group for Lyme. They called Chris back as well and it appeared to be a constructive conversation. The lady he spoke to has been fighting Lyme. Chris shared with her what we are on and what we have done and experienced. He asked if there is anyone in Houston that treats chronic Lyme and she said the only person in Houston that treats Lyme is Dr. Salvato. Chris explained that we had called her but did not receive a response back. She explained that a couple years ago the Texas Medical Board pulled several doctors licenses for treating chronic Lyme and so some doctors left to practice in some other states. In fact, Dr. Cowden, a doctor we learned about Monday at Dr. Kolodjski's office, that treats Lyme through natural means, used to practice in Texas and left Texas when the medical board began pulling licenses. This isn't the first time I have heard of this. I had read about a doctor in New York who lost his license for treating a patient for Lyme. Like I have said before, this disease is complicated, complex and very political. Doctors agree on how Lyme is transmitted but beyond that there is no common ground. I don't quite get this if you half a brain cell and understand the bacteria we are dealing with, but maybe those brain cells go out the window with the money they spend on medical school. I don't know. The lady explained to Chris that we have to call and ask for an appointment for symptoms of chronic fatigue or fibromyalgia, which is her specialty. When we actually get in to see her we then explain we are there to be treated for chronic Lyme. I guess you have to know where the back door is and what the secret password is to get in. Frustrating, but we are trying it. Please be in prayer that we are able to get an appointment fairly soon and that we find favor with this doctor.
